Partner Organizations

[vc_row][vc_column width=”1/1″][vc_column_text][dropcaps type=’circle’ color=’#ffffff’ background_color=’#007da6′ border_color=”]T[/dropcaps]he DSC of Puget Sound partners with many regional and national organizations in order to expand the reach of what we can offer to our local members. Visit any of these organizations for more information.

The Down Syndrome Community Helpline (206-257-7191) is available for New Parent Packet orders, or any general questions you may have about Down syndrome

The Down Syndrome Community has a Yahoo! Group we maintain to keep members informed about issues involving Down syndrome and other developmental disabilities, and of educational opportunities in our area. You must have a Yahoo ID before using this service.

We are affiliated with UPSIDE!, an informal society of individuals, parents, and friends located in Kitsap County, Washington who are involved with the world of Down Syndrome.

Dads Appreciating Down Syndrome now has a local chapter sponsored by the DSC.

The ARC of King County provides information and advocacy for all persons with disabilities in and around King County Washington. They have been an active voice in the community since 1936.

The Arc of Washington State promotes the education, health, self-sufficiency, self-advocacy, inclusion and choices of individuals with developmental disabilities and their families.

The Washington State Division of Developmental Disabilities strives to develop and implement public policies that will promote individual worth, self-respect, and dignity such that each individual is valued as a contributing member of the community. The DDD is part of the State Division of Social and Health Services (DSHS).

Informing Families Building Trust is sponsored by the Washington State Developmental Disabilities Council, in collaboration with the Division of Developmental Disabilities and others, to provide information about issues, services and supports that make a difference in the lives of individuals with developmental disabilities and their families.

The mission of the Washington State Developmental Disabilities Council is to work collaboratively with people with developmental disabilities, families and guardians, service providers, advocates and policy makers to assure that individuals with developmental disabilities and their families have access to culturally competent, consumer/family-centered supports and other assistance that promote independence, productivity, integration and inclusion into the community of their choice; and to promote this vision in the public policy and planning arena through system change, community capacity building and advocacy at the local, state and national level.

Virginia Mason Issaquah’s Down syndrome program, led by Rebecca Partridge, MD, is the first of its kind in the Seattle area. This unique program offers a range of services, including primary care for children with the genetic condition, health care maintenance, coordination of subspecialty needs, prenatal consultations and neonatal support. Services are also offered in the Virginia Mason University Village Medical Center on select days.

We are affiliated with the National Down Syndrome Society, the national policy making organization committed to being the national leader in enhancing the quality of life, and realizing the potential of all people with Down syndrome.

The National Down Syndrome Congress is another national organization working to protect rights of individuals with Down syndrome.

Parents, educators, advocates, and attorneys go to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities.

The IEP Toolkit was created by the Educational Coordinator at Cincinnati Children’s Hospital Medical Center to help families of children with DS become knowledgeable, prepared and empowered Partners in the IEP process.

The Social Security Disability Resource Center is an informational website that provides answers to questions about how to apply for social security disability, appeal a claim in the event of a denial, navigate the federal system, and how to avoid common mistakes made by applicants. The site’s author is a former disability examiner for the Social Security Administration.

The NDSS has released a publication on Aging and Down Syndrome: A Health & Well-Being Guidebook, available online and in print—free of charge. This is a resource for families and caregivers of adults with Down syndrome that covers medical issues commonly encountered in adulthood, as well as how to provide person-centered care. The goal for this guidebook is to provide guidance, education and support to families and caregivers of older adults with Down syndrome, and to prepare them for medical issues commonly encountered in adulthood.

The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy.

Down Syndrome Guild of Greater Kansas City has another comprehensive website and is the proud sponsor of the National Down Syndrome Congress 2007 Convention.

Stanford University’s School of Medicine has a Center for Research and Treatment of Down Syndrome that is doing some ground-breaking research with respect to DS.

Research Down Syndrome (RDS) is a non-profit foundation that supports Down syndrome cognitive research, an area that in the last several years has experienced great advances towards developing biomedical therapies to treat the cognitive impairment of people of all ages with Down syndrome. The potential of these treatments to address Down syndrome cognitive dysfunction is tremendous—improving memory, learning and communication—and expanding and enhancing life opportunities for these individuals.

The Down Syndrome Association of Snohomish County (DSASC) serving the needs of those in the Snohomish County Washington area.[/vc_column_text][/vc_column][/vc_row]